E.S.A.E.
Association of Rare Patients of Greece
We are a newly founded primary Association, based in Athens, whose vision is to support the Rare Patients of Greece.
In particular, it is a result of the initiative of Patients and Parents of patients suffering from rare diseases, with a broad experience in asserting the rights of patients, on both national and European level.
Our founding members are trained representatives of the European Academy of Patients (EUPATI) and the Patients Academy of the European Organization for Rare Diseases (EURORDIS), while we are also members of EURORDIS and founding members of the Greek Patients Association.
The number “95”, the distinctive title of our Association, was chosen because it symbolizes the percentage of rare diseases, for which no medical treatment has been found yet.
19Α Kapnikareas Street, Athens, P.C. 10 556
210 2202 695
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